Monday, May 11, 2009

Join Our Virtual Advocacy Day: Support the ALS Advocates on the ground in Washington DC

Even if you can't be at this week's Advocacy Conference in Washington, you can still make a difference! Today, we need every ALS Advocate who is not in Washington DC for the Advocacy Conference to contact their U.S. Senators and urge them to support continued funding for the ALS Research Program (ALSRP) at the Department of Defense (DOD).

Specifically, ask them to sign the "Casey-Snowe" ALS Dear Colleague letter, which is being circulated in the Senate this week. The letter calls on Congress to provide $10 million in funding to continue the ALSRP, the only ALS-specific research program at the DOD. Continued funding for this program also is critical because, unlike many other research programs that focus on basic science, the ALSRP is specifically designed to develop new treatments for ALS. So please contact your Senators TODAY.

The nearly 1,000 advocates from across the country who are attending the Advocacy Conference will put a face on this disease (and your message) when they meet with Members of Congress on Tuesday, May 12. With your help, we can send a loud and clear message to Congress. So please contact your Senators TODAY. And tell your friends, family and colleagues to do the same. A sample letter you can send directly to your Senators is available in the Advocacy Action Center of the ALSA National website:

If you don't know the names of your Senators, don't worry. The Advocacy Action Center will identify them for you and allow you to send a message to them directly from the site. A copy of the Dear Colleague letter being circulated by Senators Bob Casey (D-PA) and Olympia Snowe (R-ME) is available by clicking here .

Thank you! Through advocacy, we are creating the roadmap that will lead to a cure!
Photo: Patient Lorri Coppola, 2007 Advocate, Lost her battle with ALS in 2008.

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